"Perhaps the most convincing evidence that diet and lifestyle can have an impact on NF is cases where a NF gene has been in a family for generations but started causing more problems when combined with today's diet and toxin exposures.
"Until the past 100 years or less, processed foods, air pollution, radiation, toxic chemicals and preservatives were almost unheard of. The number of people affected with things like cancer, autism, ADD, ADHD, acne has risen multiple times over. Though yes, I do acknowledge that with NF1 the problem is our genes mutating. My family has been affected by NF1 since at least the late 1890s. My great grandmother died at 96 with almost perfect health compared to later generations affected such as my grandpa, great uncles. aunts, uncles and a couple cousins. I know for a fact that diet and quality of life has affected them."--Diet and Nutrition threadFor an example of a MD (medical doctor) applying nutrition to help manage another condition with no proven cure (multiple sclerosis) see this inspiring talk by Dr. Terry Wahls: Minding Your Mitochondria. Much of what she recommends could be helpful for many chronic conditions. You can read about her approach to healing through finding food sources of things that helped to target her chronic condition and many chronic conditions in her book, The Wahls Protocol: How I Beat Progressive MS Using Paleo Principles and Functional Medicine. The approach she designed to manage her chronic condition with nutrition and diet is now being tested in clinical trials. Another book, Anticancer: A New Way of Life is yet another example of a MD (doctor) using research and nutrition to address his or her own chronic condition.
This site collects patient reports, research, and articles about natural approaches to managing neurofibromatosis, with a focus on NF1."